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In
this section I have endeavored to put together information that parents
can access easily. I have tried to include information specific for
Victorian families,, however these is more general information that
others will also find useful. I know when I started researching biomedical
treatment options for my son many years ago, I had to spend hours trying to
find what I was looking for. Often I would lose the link and have to spend
more time trying to find the information again. I have purposely tried
to include as many Australian based resources, especially for product
availability. This is a work in progress so I would encourage you to
visit occasionally for new additions.
Finally,
I have no financial interest to any of the links or products, the only
interest I have is to provide, you the parent, with the information and
resources so that you can begin biomedical treatment of your child as
soon as possible. The sooner your child begins biomedical
treatment the sooner they will begin to recover.
For
advice or to book a consultation for your child call (03) 8802 7687 or
email
me.
New Parents
If
my experience is anything to go by, a diagnosis of autism for your child
is a shock, totally unexpected. Next is the realisation that you know
nothing about the diagnosis of Autism Spectrum Disorder. The specialists
you see are unhelpful, and rarely give any advice that may give your
child some hope of recovery. This section contains many of the initial
resources that a new parent needs to assess what options are available
so that they can make an informed decision and hope for the future. The
information, resources and support is there - you just need to know
where to go.
Websites
Autism Victoria
Asperger's
Syndrome Support Network (Aust)
MINDD
Foundation (Aust)
Dana's
View From The Inside A
mothers documented recovery of her autistic sons (extremely informative
website)
Talk
About Curing Autism A
useful website for parents of children who have just received a diagnosis of
autism
Generation
Rescue A
parent-founded organisation to help parents focus on Biomedical treatments for
their children
do3learn
A website with free
printable
Picture
Exchange Communication System (PECS)
picture cards and
emotions
games.
Books
Children
with Starving Brains. Jacquelyn McCandless MD
Biological
Treatments for Autism and PDD. William Shaw Ph.D.
Asperger's
Syndrome: A Guide for Parents & Professionals. Dr Anthony
Attwood
Fed
Up With Food Additives. Sue Dengate
(Aust)
Autism
& Attention Deficit Disorders: Understanding and managing Diet
Therapy for your child. Judith Salmon & Leanne Pearce
(Aust)
Friendly
Foods. Royal Prince Alfred Hospital Allergy Clinic (Sydney)
Special
Diets for Special Kids. Lisa Lewis
Special
Diet I. Karyn Seroussi
Special
Diet II. Karyn Seroussi
Some
of these books may be available to borrow through your State Autism
support service (e.g. Autism Victoria)
Dietary Intervention
Supporting Research
That Dietary Modification Can Benefit The Majority Of Children
Although
parents have heard that changing the diet may help, many medical
specialists warn against changing a child's diet. Unfortunately delaying
the help that these children urgently need. If
you need to be convinced that dietary intervention can benefit your
child, below are some selected articles (in no particular order) that
will hopefully convince you to take it seriously. There are plenty more on the
internet, and even more parents that will confirm the benefits of
dietary intervention.
Can
Dietary Intervention be used successfully
as a Therapy for Autism? http://osiris.sunderland.ac.uk/autism/dietrachel.htm
Food
Intolerance and Dietary Modification in Children with Autism Spectrum
Disorder (ASD) http://www.cs.nsw.gov.au/rpa/Allergy/default.htm Click
on Publications/Resources then scroll down to Research and Medical
Publications at the bottom of the page.
From the
Autism
Network for Dietary Intervention
( ANDI)
Resources website.
http://www.autismndi.com/news/default.asp?content=RESOURCES
The
GFCFKids Diet Survey -
Preliminary Results
Nutritional
Interventions for Children with Foetal Alcohol Spectrum Disorder (FASD)
http://www.come-over.to/FAS/FASDnutrition.htm
Diet
& Autism / PDD / Asperger's (From the Feingold website)
http://www.feingold.org/pg-research.html
Gluten
Free / Casein Free Products Available In Australia
DariFree
is a potato based milk which is quite
popular
Hullabaloo
Food The Hullabaloo Foods product range is designed to meet the
needs of allergic or food intolerant children. Their range of foods
excludes combinations of the most common allergens including: gluten,
wheat, dairy, eggs, corn, potato, sesame, rice, cocoa and soy.
Allergy
Block Stock a wide range of organic, free of gluten, wheat, dairy,
egg, nut, soy, colourings and preservatives.
Brighterlife
Wheatfree Foods Produce a range of products that are wheat, gluten,
dairy, egg, nut and preservative free.
Products
Kirkman
Laboratories Supplier of supplements formulated for ASD children
Thorne
Research Supplier of supplements formulated for ASD children
Houston Neutraceuticals
Supplier of enzyme supplements formulated for ASD children
Support
Groups / Services
Parent Support
Groups
Contact
your local Autism Information and Support Service, they can put you in
touch with parent support groups closest to you, give you access to
books, journals and a regular newsletter or magazine, conferences,
professional support services, etc. They do an incredible job, please
support them.
Online
discussion forums
The
parents on these lists are incredibly well informed and supportive.
There is always someone on these lists that can answer your questions or
just lend a supportive ear. Although it may feel a bit daunting to post
a question and appear silly - there is no such thing as a silly question
on these groups! They are there to support you - use them.
Parent
on these groups use a lot of acronyms in their posts. A useful glossary
of what they all mean can be found at: http://home.earthlink.net/~moriam/Glossary.html
Autism
Biomedical Discussion group for parents and professionals
(USA)
Autism
Biomedical Discussion group for the discussion of research and
biomedical interventions as they apply to the investigation and
treatment of autistic spectrum disorders.
Biomedical
Autism Group
(Aust)
Biomedical
Autism is a Sydney based email forum which has an interest in Biomedical
Treatments for children with Autism
Spectrum Disorder.
GFCF
Australia
GFCFAustralia
is principally an egroup for people who are implementing a gfcf diet for
their autism spectrum children/selves in Australia. The main aim is to
provide a forum to share information about suitable foods, shops,
recipes.
GFCF
Kids
(USA)
The
principle aim of this list is to provide a discussion forum for parents
of children on the autism spectrum who are avoiding gluten and casein
and other substances in their children's diets.
Support
Services
Autism Victoria
Statewide
Autistic Services Inc
supports people with a disability, their
families and carers in environments that realise the full potential of
each individual.
Association
For Children With A Disability
a non-profit organisation providing
information, support and advocacy to Victorian Families who have a child
or young adult with any type of disability or developmental delay.
Youth
Disability Advocacy Service
provides individual advocacy for young
people with disabilities between the ages of 12 and 25 to achieve their
rights and be heard.
Commercial
Support Services
Autism
Action assists with one on one personalised educational support in
the family home.
For Parents That Have
Begun Biomedical Treatments
Websites
Pfeiffer Institute Defeat Autism Now! (DAN!)
Hair
Mineral Analysis Testing information
website by Andy Culter who uses "The Counting Rules" to
determine if someone has mercury poisoning.
Salicylate content of foods
Biomed
Coach For help with working through the different diets available.
Established by a Sydney based mother very experienced in all the diets
available.
do3learn
A website with free
printable
Picture
Exchange Communication System (PECS)
picture cards and
emotions
games.
Books
Autism: Effective
Biomedical Treatments: Jon Pangborn, Sidney MacDonald Baker
Breaking the Vicious
Cycle: Elaine Gotschell (SCD Diet) Gut
& Psychology Syndrome: Dr Natasha Campbell-McBride (GAPS diet)
Dietary
Intervention
Online Discussion
Forums Autism
Diet Australia Many
parents of Autistic children have implemented a gluten and casein free
diet with very positive results. However many parents have found that
additional gains have been made by further limiting the diet to exclude
other foods (e.g. soy and corn). Some children are also showing very
positive responses to some additional dietary interventions. The purpose
of this list is to provide a forum for discussion regarding advanced
dietary treatment options such as the Specific Carbohydrate Diet (SCD),
the Body Ecology Diet (BED), FAILSAFE diet, Feingold diet, Gut and
Psychology Syndrome (GAP)Diet, Sara's (Lutein free) Diet, Low Oxalate
Diet, Low Phosphate Diet, Blood Type Diet, Paleo (Cave Man) diet,
grain-free, sugar-free, phenol free, supplementation, and other dietary
interventions for children with autism spectrum disorders.
Travel Gluten
Free Travel
is a website listing a worldwide database of hotels,
cruise companies, restaurants, resorts and airlines sympathetic to
people with gluten sensitivity.
Support
Groups
Online Discussion
Forums Autism
Challengers (Aust -New site) This
group is for those with children that have not responded to treatment
and/or are more on the moderate to severe end of the Autism spectrum,
especially the non-verbal ones. Chelating
Kids Australia This
group is for parents with children that have been found to have toxic
overload from today's over processed foods , immunisation and household
chemicals. The aim is to spread the word about natural chelation methods
and give our children a better future. Autism-Mercury To
discuss current issues related to the increasing incidence of autism the
potential link between excessive mercury exposure via thimerosal in
infant vaccines. Topics include: mercury detoxification ("chelation"),
mercury-related issues/news, and vaccination-related issues/news.
Sulfur
Stories
This
list is set up as a forum for people who have seen very positive or very
negative responses to sulfur supplements of various sorts. Discussions
of biomedical diagnostic testing are welcomed and encouraged, and people
may also share abstracts from research articles, when relevant.
Trying
Low Oxalates
This
group is set up for those wanting to explore the low oxalate diet, and
will offer information and support on how to implement this diet and
other methods of lowering oxalates
Additional
Therapies
Applied
Behavioural Therapy (ABA)
Research
papers mainly related to ABA therapy versus outcomes:
Early
Intensive Behavioral Treatment: Replication of the UCLA Model in a
Community Setting
Journal of Developmental & Behavioral Pediatrics, (2006), 27 (2),
145-155
http://www.pacificautismcenter.com/ADA-Info/Cohen2006.pdf
A Comparison of Intensive Behavior Analytic and
Eclectic Treatments for Young Children with Autism
Research in Developmental Disabilities, (2005), 26 (4), 359-383
http://www.ctfeat.org/articles/ABAvEclectic.pdf
Behavioral treatment and normal educational and
intellectual
functioning in young autistic children
Journal of Consulting and Clinical Psychology, (1987), 55, 3-9.
http://faculty.caldwell.edu/kreeve/Lovaas%201987.pdf
Clarifying
Comments on the UCLA Young Autism Project
University of California, Los Angeles. Department of Psychology (2000)
http://www.ctfeat.org/articles/LovaasRebut.htm
Long-term outcome for children with autism who
received early
intensive behavioral treatment
American Journal on Mental Retardation, (1993), 97 (4), 359-372.
http://www.ctfeat.org/articles/Lovaas93.htm
Intensive Behavioral Treatment for Children with
Autism: Four-Year Outcome and Predictors
American Journal on Mental Retardation,(2005), 110 (6), 417-438.
http://www.ctfeat.org/articles/AmericanJournalMentalRetardationNov2005.pdf
Relationship
Development Integration (RDI) contact
Autism Victoria
for local practitioners
There
is also an Australian yahoo support group for RDI, here is the link:
http://health.groups.yahoo.com/group/RDIsupportgroup/
Picture
Exchange Communication System (PECS):
Website with free
printable
picture cards and emotions games. do3learn
Angelfire
Another website with
free
printable
Picture
Exchange Communication System (PECS)
picture cards.
Sound
Therapy
Listen
Program
For
other Listen
program practitioners in Victoria
Neurotherapy
Feedback
DORE
Program
Kids
Therapy Network
Autism
Games - A
site about simple games that will engage young children with Autism
Spectrum Disorders in play. Tips or strategies for making games or play
more fun and educational.
For
advice or to book a consultation for your child call (03) 8802 7687 or email
me.
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